Lotte Geys

1.Why to set-up a registry? -Value of real-world MS data

Tina Parciak

2.What to collect? -Harmonised datasets and recommendations for data collection

Marcel Parciak

3.How to collect? Data acquisition software systems

Dipak Kalra

4.How to ensure privacy and trust of stakeholders? Storage, data protection and governance

Liesbet Peeters

5.What's next? Inspiring grant momentums in the real-world MS data arena

Helmut Butzkeuvent
Monash University

Anneke Van Der Walt
Monash University

Ruth Dobson
Optimise: MS

Nikolaos Grigoriadis
Hellenic Academy of Neuroimmunology

Pietro Iaffaldano
Italian MS Registry

Rod Middleton
United Kingdom MS Registry

Jan Hillert
Karolinska Institutet

Dana Horáková
Immunological Committee of Czech Neurological Society

Alexander Stahmann
German Multiple Sclerosis Registry

Magd Zakaria
OEgyptian Society of MS

Juan Ignacio Rojas
Multiple Sclerosis Center Buenos Aires

Amber Salter
UT Southwestern Medical Center

Hollie Schmidt
Accelerated Cure Project, Inc.