The importance of real-world MS data

People with MS are key to establishing a trustworthy ecosystem for reusing health data for research and for learning health systems. The MSDA aims to engage people with MS in decisions about the use of their personal data, to inform them about data technologies and explaining how their success depends on the sharing of information. We aim to explain
Source: Data Saves Lives"> how and why data can be used for care and research, what is allowed and what not and how personal information is kept safe. To accomplish this, a close collaboration has been set up with the European Patient Forum (EPF) and their “Data Saves Lives” initiative.