Educational Program


1. Why to set-up a registry?
→ Value of real-world MS data
2. What to collect?
→ Minimal datasets and recommendations for data collection
3. How to collect?
→ Data acquisition software systems
4. How to ensure privacy and trust of stakeholders?
→ Storage, data protection and governance
5. What's next?
→ Inspiring grant momentums in the real-world MS data arena?
One of our key strategic objectives is to promote trustworthy and transparent practices in the use of real-world MS data. In 2022, we prioritise delivering an Educational Program touching upon the question “How to set-up a registry”. We will test-trial this program in collaboration with representatives of Central-Eastern-Europe (CEE) and Latin-America (LATAM).