Governance
 
 
Core Group Advisory Group Operational Team

Core Group

Our Core Group has the ultimate responsibility for the operations of the MS Data Alliance and is responsible for the strategic direction of our organization, its financial succession and its relationship with their partners

Dagmar Krefting

University Medical Center Göttingen (UMCG)

Germany

Dipak Kalra

President i~HD

Great Brittain

Giancarlo Comi

President European Charcot Foundation (ECF)

Italy

Jana Hlavacova

CEO EMSP

Czech Republic

Jan Samyn

General Manager MS Data Alliance

Belgium

Liesbet M. Peeters

UHasselt - Chair MS Data Alliance

Belgium

Yves Moreau

KU Leuven (ESAT)

Belgium

Advisory Group

The Advisory Group consists of carefully selected key opinion leaders representing the different stakeholders and is therefore the key scientific steering body of the MSDA (give formal advice to Core Group)

Aki Rintala

LAB University of Applied Science, Lahti

Finland

Alexander Stahmann

German MS-Register by the German MS Society

Germany

Alexey Nikolaevich Boyko

RUCTRIMS

Russia

Amber Salter

UT Southwestern Medical Center

USA

Anne Helme

Multiple Sclerosis International Federation

United Kingdom

Bassem I. Yamout

MENACTRIMS

Libanon

Bernard Uitdehaag

Multiple Sclerosis Center Amsterdam

The Netherlands

Bimsara Senanayake

SLCTRIMS

Sri Lanka

Bram Platel

MS in beeld

The Netherlands

Carlos Navas

LACTRIMS

Colombia

Clare Walton

Multiple Sclerosis Society

United Kingdom

Elena H. Martinez De Lapiscina

European Medicine Agency

Spain

Francis Arickx

National Institute for Health and Disability Insurance

Belgium

Hollie Schmidt

Accelerated Cure Project, Inc

USA

Jefferson Becker

BCTRIMS

Brazil

Joanna Dronka

Person living with MS

Poland

Juan Ignacio Rojas

Multiple Sclerosis Center Buenos Aires

Argentina

Kazuo Fujihara

PACTRIMS

Japan

Magd Zakaria

Egyptian Society of MS

Egypt

Nikolaos Grigoriadis

Hellenic Academy of Neuroimmunology

Greece

Peter Rijnbeek

Erasmus University Medical Center

The Netherlands

Rod Middleton

United Kingdom Multiple Sclerosis Registry

United Kingdom

Ruth Dobson

Optimise: MS

United Kingdom

Shi Fu-Dong

Center for Neuroinflammation, Beijing Tiantan Hospital

China

Xavier Montalban

Multiple Sclerosis Center of Catalonia (CEMCAT)

Spain

Operational Team

The MSDA operational team is responsible for daily operations and to execute the work plan as agreed upon by the Core Group, formally advised by the Advisory Group

Ashkan Pirmani

UHasselt - Data Scientist/MLOps

Brenda Hernandez Bulnes

UHasselt - Communication & Dissemination Officer

Fabiana Totaro

ECF - Scientific Secretariat

Gunther Meyer

Liberius - IP Lawyer

Ilse Vermeulen

UHasselt - Research Group Manager

Lorela Lohan

ECF - Project Manager

Lotte Geys

UHasselt - Data Governance Manager

Matteo Principe

ECF - Project Manager

Nasim Shabani

UHasselt - Full Stack Developer

Tina Parciak

UHasselt - Minimal Datasets & Common Data Models